By becoming a piece of the KT puzzle, you can help children that suffer from KT!
By becoming a piece of the KT puzzle, you can help children that suffer from KT!
By becoming a piece of the KT puzzle, you can help children that suffer from KT!
By becoming a piece of the KT puzzle, you can help children that suffer from KT!
By becoming a piece of the KT puzzle, you can help children that suffer from KT!
By becoming a piece of the KT puzzle, you can help children that suffer from KT!
By becoming a piece of the KT puzzle, you can help children that suffer from KT!
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Researchers Pinpoint Cause of Port Wine Stain & Sturge-Weber Syndrome

May 8, 2013

Cause of Port-Wine-Stain Birthmark Pinpointed

Single, Random Change to Gene During Fetal Development Causes Birthmarks and the More Serious Sturge-Weber Syndrome

Brenda Goodman


Click here to read the story







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Children should be able to walk, run, and play without pain. For children with KT, that is just a dream. Please help us make that dream a reality.



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www.iGive.comDo your shopping through http://www.iGive.com/KTF and up to 26% of each purchase at 650+ participating online stores is donated to help children with KT.  Every single school supply, fall jacket, and new backpack can mean a donation for KT Foundation! Shop now!
 

What if the KT Foundation earned a penny every time you searched the Internet?  Well, now we can!
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Welcome to the KT Foundation Website



Thank you for your interest in our Foundation and our efforts to ease the burden of those living with Klippel-Trenaunay syndrome (KTS). The Foundation has two primary purposes:

  • Provide funds to the medical facilities and personnel that currently research KT and treat patients with KT and
  • Provide KT patients and their families with much-needed medical travel expense assistance.

Our children with KT deserve the chance to be treated by the very best vascular clinics and physicians. Travel to these specialized clinics, however, is very expensive.

KT is a complex disease. One person living with KT will likely have a different and unique experience from someone else suffering from the same illness. So it's a challenge to describe KT "in a nutshell." We hope you'll use the links here to gain a better understanding of Klippel-Trenaunay Syndrome.

At this site, you can also meet some of our children who are effected by KT. And, you'll learn about the clinics and physicians who specialize in treating KT. Here you'll get the latest information on the KT Foundation and its activities. Our all-volunteer staff is hard at work! You can find out how you can help - whether it's through your contribution or by volunteering your time to the KT Foundation.

The KT Foundation believes that KTS is a puzzle with many pieces: our children with KT, the families, the hospitals, the vascular anomalies clinics, the physicians and the contributions to our cause. Each is an integral piece to the KT puzzle. The Foundation's objective is to put these pieces into place. Together, we can solve the puzzle!!

Thank you for your interest and for visiting this site. We hope you'll come back often. You have the potential to be our "biggest piece" or - better yet - our final piece of the KT puzzle.

If you have questions, email us at ktfoundation@earthlink.net . You'll get a prompt response!

The KT Foundation Bracelets are here!
Take a look.

   

The KT Foundation is a U.S. 501(c)(3) tax exempt organization

If you prefer to send a tax-deductible donation through postal mail:
 

The KT Foundation
P.O. Box 205
Lakeview, NC 28350

Our Mission

The KT Foundation is a group of volunteer advocates for those afflicted with Klippel-Trenaunay Syndrome (KTS.) The Foundation is a working center providing the latest medical news on KTS, an up-to-date list of specialists and accurate information to support individuals with KTS. We strive to support medical research and make options for travel expense assistance available to KTS patients who need medical care from facilities that specialize in treating this disease.

The KT Foundation will act as a database to ensure that patients are contacted for research projects and clinical trials. We use the information we gather to support and educate patients and any interested parties wanting to learn more about Klippel-Trenaunay Syndrome.

 
On the Turning Away

(David Gilmour, Anthony Moore)

(Chorus)
No more turning away from the weak and the weary. No more turning away from the coldness inside.

Just a world that we all must share. It's not enough just to stand and stare.

Is it only a dream that there'll be
No more turning away?

The purpose of this web site is to provide information and support for those afflicted with Klippel-Trenaunay Syndrome. This web site is not intended as medical advice but is the opinion of it's authors. Any medical decisions should be carefully discussed with a physician. For information regarding physicians and medical facilities treating KTS, please visit our links page.


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